Before Noah's diagnosis, we didn't know much about Type One Diabetes, if at all. So when Noah started with some of these symptoms in the picture, we mistook it for other things. We couldn't have gone to the doctors any sooner than we did, it wouldn't have changed anything. But, had we left it any longer, or had the GP misdiagnosed him (which unfortunately does happen), it would have been much more serious for Noah. DKA is a very serious and life threatening condition for Type Ones, and I am beyond thankful that the GP did pick it up and Noah was able to get the treatment for DKA and it hadn't caused any serious or lasting damage to his organs.
This is why raising awareness for foundations like JDRF through these charity walks is so important. So that if you find something a little off with either your child/ren or even yourself (because yes, Type One can strike anyone at any time at any age), get tested.
Noah's Story - Why we're raising awareness and asking for donations
5th October 2018. A date that we won't ever forget. I remember every single minute that happened that day.
About 2 weeks prior to this date, Noah had been going through more nappies than usual. He was also drinking more water, so I thought just a growing 2 year old boy. But each day there would be more and more wet nappies, to the point where they were soaking through to his pjs, sleeping bag every morning. We tried changing brands of nappies, next size up, no water past a certain time of night, encouraging wee's in the shower before bed. Nothing would work. We didn't think of seeing our GP at first, because it's just wee and they'll send us home. But as it continued to happen we thought we'll make an appointment and if they send us home then so be it, at least we ruled out anything. Noah had a virus about 2 weeks prior to the wee (4 weeks prior to diagnosis) and we thought maybe it was a UTI and get a script and go home. The day of the appointment, Noah started vomiting. I thought oh ok you've got a tummy bug on top of this weird wee thing. A couple more vomits and I was contemplating not going to the doctors, because we didn't think the vomiting and wee were related. We decide to still go to the appointment, and find that the GP is running late. Noah was extremely uncomfortable and irritable and after still waiting 50 minutes I was about to walk out the door thinking I'll come back to check the wee issue out another day when Noah isn't vomiting. At that moment, Noah's name was called. He wasn't our regular GP, and wasn't the one who had seen him with the virus the month before, so we told our story. The GP wanted to try and catch some urine to test it, but of course the day he's not weeing all the time is when he needed to, as he was dehydrated from vomiting. Then the GP tested his blood sugar levels. He spoke to us about diabetes. I admit I had googled excess wee and it did come up, but they had tested his blood sugar the month prior for the virus and they came good then, so I had no reason to believe he had it. The GP tested his blood sugar, and couldn't look at me or Steve. He stared at the reading for what felt like an eternity. I knew. I knew in that moment that something was very wrong. The GP went to his computer and typed and printed out a letter. He said take this to the emergency department immediately. Noah has Type One Diabetes. He is very sick and needs immediate medical attention. I said oh okay so we go there they treat him and no more diabetes. He said he will have it forever. He is very sick from the diabetes so that will go once treated, but the diabetes will stay. I lost it. I tried so damn hard to not lose it for Noahs sake, but nothing could stop it pouring out of me. The ladies at the reception desk were wondering what was going on. My regular GP had come out of his room and saw us and knew something was wrong. I couldn't speak. His wife was actually a part of the team that we would soon come to meet, so he tried his best to explain he would be taken care of. The car trip to the hospital just filled with tears. Something was wrong with my baby. Steve was keeping calm for all our sakes, god love him. Holding hand so tightly I knew he was scared too. Steve dropped us off at the entrance, as I'm walking Noah in he vomits again. The triage nurse asks whats wrong, just the vomiting she asks. i'm a mess as I pass her the note from the GP, still unable to speak. She makes a call, then tells us to go straight in. I'm thinking shit this is really serious. There is a large amount of doctors and nurses rushing over Noah. They're asking us all these questions. They are putting needles in his little arms and he's screaming out. They tell us he's in DKA, Diabetic Ketoacidosis. They tell us its very serious and he needs to go to the Intensive Care Unit. He had too much acid in his blood, and his body was essentially starving, so they had to give fluids and meds to bring it down, but to not bring it down too quickly so we stay in intensive care til his levels normalise. Overnight we stay in the ICU, then we go into the ward and exit from ICU around midday the next day and into a whole new world of what would become our new normal. Our new normal of blood sugar checks through finger pricks, minimum 8 times a day. Insulin injections, minimum 4 times a day. Carb counting. Treating highs quickly so they don't cause harm one day to his other organs. Treating lows quickly so that he doesn't lose consciousness and potentially not wake up. Yes this is how diabetes is managed, however it is not a cure. It is helping keep Noah alive each and every day. We are acting as his pancreas every minute of every day because his is not functioning. This is a disease he will have forever. Diagnosed at 2.5 years old and being told he has a disease for the rest of his life. Unimaginable. There needs to be a cure, there needs to be awareness raised, there needs to be money donated so researchers can figure out why, ways to make it more manageable, or at the very least, a cure.
ONE WALK - 5KM -SUNDAY 27TH OCTOBER - 9AM CHECK IN - SPEERS POINT PARK
About One Walk Newcastle
The world’s biggest type 1 diabetes (T1D) fundraising event.
Each year, JDRF One Walks around the globe bring together around a million people to raise over $85 million for life-changing T1D research. This success is only possible because of the support, commitment and strength of our community.
Show the strength of your local #JDRFbluearmy by getting your family, friends and colleagues together for a great day.
You can make a powerful impact by joining the global leader in T1D research for a fun, FREE family day out with a shared goal.
So bring your picnic blanket and your walking shoes for a beautiful walk followed by lunch and kids activities. The stars of the day are those living with T1D and we will be handing out orange caps to recognise and celebrate these champions.
Connect with others in your T1D community for a day to celebrate the funds you have raised to cure, prevent and treat type 1 diabetes.
Walk with us, and help turn type one into type none.
Let's do this for Noah!
We are taking part in JDRF One Walk to turn type one into type none!
Type 1 diabetes is an autoimmune disease that can strike at any time. It affects more than 120,000 Australian families, and 7 people are diagnosed every day.
So our team is walking with the #JDRFbluearmy to raise funds for research to cure, prevent and better treat type 1 diabetes.
Please DONATE NOW and support our walk to change the lives of Australians living with T1D.
Our Completed Missions in the JDRF Blue Army
Thank you to our Sponsors
such a brave boy xxxx
Heath Baker - Exec. Gm
Well done SOXY, your Engenium family is right behind you buddy..!
Hi Maree, Well that bought tear to the eye. So well written I had to keep reading
Wishing you and your family all the best Stephen
Big love little man!!! X
I can’t imagine how tough this journey has been for you guys and for Noah. You’re doing an incredible job x
Jess, Des And Bailey
I’m in tears reading Noah’s story. I can’t begin to imagine your pain! Xo